Tissue Donation. Spinal Muscular Atrophy Clinical Research Center. Columbia University Department of Neurology


This website is supported by the CDC Division of Human Development and Disability Grant Number 1H75DD000473-01

Management and Treatment of SMA

Care of SMA Patients - Recommended Guidelines

This brochure is based on the Consensus Statement for Standard of Care of SMA patients, a guideline for the care of SMA patients, published in the Journal of Child Neurology in August 2007. The goal of the consensus statement is to serve as a resource for healthcare professionals and establish recommended guidelines for the clinical care, and management of SMA.

The Family Guide to the Consensus Statement for Standard of Care in SMA was prepared by SMA Advocates for families and patients affected with SMA. It provides an excellent review of the key care recommendations for children and adults living with SMA.

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