News And Staff Publications

» The SMA Indiana Patient Registry is now on-line.

» SMA Standards of Care.

» Six Minute Walk Test Demonstrates Motor Fatigue in Spinal Muscular Atrophy.

» Scoliosis surgery in children with neuromuscular disease: Finding from the US National inpatient sample.

» Reliability of telephone administration of the PedsQL Generic Quality of Life Inventory and Neuromuscular Module in Spinal Muscular Atrophy.

» Increased fat mass index in patients with spinal muscular atrophy.

» Clinical Outcome Measures in Spinal Muscular Atrophy.

» Spinal Muscular Atrophy.

» Learning to Walk: challenges for spinal muscular atrophy clinical trials.

» The changing natural history of spinal muscular atrophy type 1

» An expanded version of the Hammersmith Functional Motor Scale for SMA II and III patients

» Issues in SMA clinical trial design The International Coordinating Committee (ICC) for SMA Subcommittee on SMA Clinical Trial Design

» Challenges and opportunities in clinical trials for spinal muscular atrophy

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