Educational Seminars. Spinal Muscular Atrophy Clinical Research Center. Columbia University Department of Neurology

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This website is supported by the CDC Division of Human Development and Disability Grant Number 1H75DD000473-01


Educational Seminars




Columbia University's Spinal Muscular Atrophy Clinical Research Center strives to present lectures, hands- on programs and interactive discussions that families of our clinic find useful. These events are a great networking opportunity among the parents and families, as well as between the staff and families. We are well aware that decisions on best care are not made amongst medical professionals alone. We invite you to attend our semi-annual SMA Day, which provides SMA education, introduces you to family resources, and offers an opportunity to interact with other families. In addition, the SMA Clinical Research Center sponsors guest speakers and educational programs throughout the year.

educational seminar

PAST EVENTS



SMA CME Course for physicians and other allied health professionals

We are inviting you and other interested colleagues to the CME course sponsored by the SMA Foundation and the Columbia SMA Clinical Research Center. The program aims to educate physicians and other allied health professionals about the care of patients with SMA and other pediatric neuromuscular conditions, such as Duchenne Muscular Dystrophy and congenital muscular dystrophies. The conference will be held on Saturday, October 2nd from 8am to 4pm in the Hammer Health Sciences Building at Columbia University Medical Center.

CME course registration can be completed using the following link: https://register.columbiacme.org/conference.cgi?rm=view&conference_id=421790


CME course manuals (pdf format):





educational seminarSaturday, August 2, 2008
Columbia University's SMA Day



Saturday, April 5, 2008
Columbia University's SMA Day
[see flyer]

Thursday, September 20, 2007
Stem Cell Research Update
Dr. Hynek Wichterle
[see flyer]

Thursday, October 18, 2007
Physical Rehabilitation
Dr. Nancy E. Strauss
[see flyer]

Thursday, November 15, 2007
Genetics Of Neuromuscular Disease
Dr. Chung
[see flyer]

December 14th 2006- Research Update presented by Dr. Petra Kaufmann who provided research information and addressed upcoming SMA projects. This initial meeting was very informative and focused on the history of clinical trials in SMA, as well as the state of upcoming trials. The first seminar gave families the opportunity to ask questions about the mechanisms of medications, timeline of clinical trials and voice their opinions about the advantages and disadvantages of their study experiences.

January 18th 2007- Adaptive Toys & Equipment. Several local companies gave quick presentation on their philosophy, services and funding. In addition, Laura Nellen discussed her experiences as an individual with SMA and how her diagnosis affected her participation in academic and social environments. Positive feedback was given by all who attended.

February 15th 2007- Orthotic & Bracing Needs. This was an informational presentation given by orthotists discussing bracing & orthotic needs for children with neuromuscular disease.

March 29th 2007- Metabolic & Nutritional Issues presented by Dr. Darryl De Vivo and Dorcas Koenigsberger PNP who gave and informational presentation discussing the metabolic & nutritional needs of children with neuromuscular disease.

April 26th 2007- Advocating for your child and navigating through the legal system. This was an informational presentation given by Sheryl Frishman (Frishman & Farber Law Firm) who discussed the legal rights of children with special needs. Issues discussed were education, equipment and other available resources.

May 17th 2007- Pulmonary Hygiene for Individuals with Neuromuscular Disease presented by Dr. Anastassios C. Koumbourlis who discussed pulmonary anatomy, care and options for children with neuromuscular disease.

June 28th 2007- Tavern on the Green SMA Awareness Event

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